Following an emotional meeting with my constituent, I was moved to call this debate.
I am challenging the Government to take the opportunity to use a legal device to overrule the patent which manufacturers Vertex hold.
This is because Vertex refused the largest ever financial offer the NHS has made in its entire history for this medicine.
The Government offered £500 million over five years for access to the drug Orkambi for CF sufferers.
Vertex refused this offer.
Crown Use licensing can prevent pharmaceutical companies from taking advantage of incredibly vulnerable people.
Orkambi is a very expensive drug to treat Cystic Fibrosis. At £104,000 per patient per year, it is not currently available under the NHS.
However, we have a power under UK patent law that hopefully will enable the Government to lift the monopoly on Orkambi.
This debate aims to give patients an opportunity to access Orkambi under the NHS and the National Institute of Clinical Excellence (NICE).
The NHS has to heal all medical conditions, Cystic Fibrosis included, so it must achieve a wise spend of its limited budget for drugs.
In the UK, 1 in 25 people carry the faulty Cystic Fibrosis gene and every week, 5 babies are born with the disease and 2 young people die as a result of Cystic Fibrosis.
Young children in particular should have access to the precision drug Orkambi as it gives them a 42% improvement both of life expectancy and a better quality of their lives too.