I am delighted that through the debate I held in Parliament last month which threatened the patent on Orkambi which is a drug to treat Cystic Fibrosis; the Minister for Health has revealed that the NHS and NICE have met and are continuing to engage in constructive negotiations next week:
“Constructive meeting with Vertex CEO with NHSE & NICE to find ways of breaking the impasse on #OrkambiNow so we can get this to those who desperately need it. Vertex, NHSE & NICE will meet again next week.”
Matt Hancock, 12:47PM 11 March 2019 https://twitter.com/MattHancock/status/1105193593860435968
Whilst it is too early to celebrate, I am thrilled for all the children who are suffering from this condition and those around them. It is great to see that we can make a difference in the House.